I'm well overdue to write another food intolerance diary, but I have noticed these last few days a very depressing trend in myself -- and millions of others across the intratubes: a ridiculous propensity for spending entire days researching my health complaints.
This would be fine if the wub were full of useful, accurate and objective information. Instead, however, it is crammed to the gills with people whose desperation and contact with each other, has turned them into dreary monomaniacs. This morning's epiphany is that I am now one of them. When you spend hours a day reading dodgy health websites there is no other conclusion to draw.
Have my symptoms grown worse? Is that why I'm doing this?
The answer to that is 'no'. My digestion -- when I stay away from the naughties -- is almost as normal as anybody's now. I don't run out of the room after a meal looking for a toilet. Sometimes I can go for days with no indigestion at all and for the first time in years, my stomach rumbles when I am hungry.
All very novel and exciting.
On the other hand (or should that be 'wrist'?), my joint movement has stopped improving and while I have been left with the ability to lead a normal, pain-free life, I can't play sport and that's just not good enough for me. That's what sent me back to my obsessive research with the sad and the crazy. Nowadays, I spend hours wandering around health food shops, hiding the supplements like a teen with a dirty magazine.
But for all that we might mock the non-scientific with their "Angel Cures" and worse, a large part of the fault lies with the mainstream medical community itself. There is no official cure or official cause for autoimmune conditions like mine. They affect so many areas of the body that our fragmented, specialised medical establishment can only treat symptom A, regardless of the effect it might have on Symptoms B, C or D. A classic example of this is the prescription of stomach destroying drugs as a temporary treatment for inflamed joints.
Many sufferers of conditions that can't be easily categorised are told they are imagining their illness. One of the top doctors in the land said as much to somebody close to me who died of Leukemia. "Go see a psychiatrist," he said. Brilliant! And probably mildly embarrassing for him in retrospect.
But they can't all be crazy, can they?
My research has led me to some very interesting theories and treatments. One I'm looking into at the moment is
Low Dose Naltrexone. Naltrexone has been around for decades as a treatment for opiate and alcohol addiction, but a few recent trials into Crohn's Disease and Fibromyalgia have come out with positive results for the drug when used in much lower doses (4.5mg). As a bonus, there are no reported side-effects and it's as cheap as chips.
A lot of sufferers of other auto-immune diseases, such as Rheumatoid Arthritis, and Multiple Sclerosis have claimed massive improvements in their conditions and are now campaigning for trials to be held. So, if you come across a petition to ask your government for a trial, please sign it. Either LDN works or it doesn't, but without proper trials we'll never know for sure and thousands will continue to suffer conditions far worse than mine needlessly.
Also, until I get better, I have nothing else to talk about. You wouldn't want that, would you?